Posts Tagged "lisa sniderman"

Playing With The Muse-A Q&A Video Aoede Interview on Culture Shock!

Posted by Aoede Muse on Apr 21, 2012 in News | 0 comments

Aoede had the privilege and fortune to be interviewed by JaimebMusings of Culture Shock April 13th! Check out the video below where Aoede talks about her new album, the meaning behind her name and much more (like her most memorable stage experience)! Enjoy 10 random album facts while you watch…

Check out Culture Shock!

Dermatowhat?? (on living with DM) Pt. 13

Posted by Aoede Muse on Jan 20, 2012 in Musings | 0 comments

“Once you make a decision, the universe conspires to make it happen.”  Ralph Waldo Emerson

January 2012. The year of the Dragon-driven, ambitious, self-assured, scrutinizing, brave… I am a Water Rat born in 1972, apparently “Smart, Magnetic, Well-liked, Affable, Quick-witted, Surreptitious, Selfish, Protective, Calculating, Obliging, Generous, Compassionate, and Possessing Strong Intellectual Powers and Great Insight, as well as being a Great Puzzle Solver…” Or at least that’s what the sign says. Like many of us and with most things in life, I take what resonates most to me (usually the most positive)! Horoscopes and zodiac signs have never had a huge impact on me, but sometimes it is fun to recognize some trait or pattern or experience and just relate to it.

This New Year definitely signifies new hope and continued improvement to me. Last year at this time, just over 3 months out of the hospital, I was going through monthly IVIG infusions and still very weak and recovering, using a walker and then cane at home. To focus on what really brought me joy and get my head out of sick mode, I also shot a music video and was working with pr folks re-designing my website and prepping for release of my 7 song digital EP: Affair with the Muse! One year later, I am now prepping for the release of my full length album and walking unassisted at home. Interestingly enough, I am still working on completing the music video I started a year ago…

KJAG Interviews Aoede!

Posted by Aoede Muse on Dec 20, 2011 in News | 0 comments

Click below to hear a special interview with Aoede on KJAG’s Homegrown Half Hour from December 14, 2011 and hear why it kept the muse on her toes!

Aoede Interview

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Dermatowhat?? (on living with DM) Pt.12

Posted by Aoede Muse on Dec 19, 2011 in Musings | 0 comments

Between a rock and a harder rock…

Are you familiar with the saying in the picture? The one with two equally hard alternatives? So today I am managing to keep the DM and inflammation suppressed with only prednisone, but my rheumatologist insists that this is not a safe and viable long term strategy, especially given that I already have been gifted some osteoporosis courtesy of the lovely prednisone (the gift that keeps giving). And I keep having these mini-flares each time I try to taper the prednisone, even just a few milligrams. So I feel like a ticking time bomb, and here we go again, once more to explore the next treatment-the one that can kick this DM to the curb once a for all… but wait a minute… haven’t we been here before? And before that? And before that…. alas, let me back up and bring you up to date…

Since October 2010, it has been a roller coaster of immuno-suppressive treatment cocktails and therapy to regain strength I lost while in the hospital for 24 days in September 2010 due to an apparent “flare of my DM.” After my initial poor reaction to IVIG (intravenous immunoglobulin) in January 2010, we became friends for 5 days each month, as IVIG was my main treatment from September 2010 through February 2011. I would like to believe it helped with my strength and energy. So hard to really know since I was also on high dose prednisone and Cellcept at the same time! I was blessed each month to have family or friends take me to the infusion center and sit with me as this strange substance sourced from thousands of donors fused with proteins in my own blood. I imagined all the new antibodies having stories and lives of their own-being strong and eager, able and bursting with health and wellness-kicking all my sick antibodies to the curb! It took a lot out of my body each week, but I kept going, and when I was not feeling depleted, would focus on connecting with fans and friends online, and even managed to shoot a new music video at the end of January and digitally release an album in March 2011!

Aoede… on Tending to Social Networking!

Posted by Aoede Muse on Nov 7, 2011 in News | 0 comments

I just had the privilege of being interviewed by Music Marketing Master, Michael Brandevold, for an artist’s perspective on social networking! Check out the article in its entirety by clicking on the picture below!

Dermatowhat?? (on living with DM) Pt. 11

Posted by Aoede Muse on Oct 19, 2011 in Musings | 6 comments

Reflections on the passing of a beautiful muse

“Don’t cry because it’s over, smile because it happened!” Dr. Seuss
(In Memory of sweet muse Amberlin who was taken from this world much too early)

Just after returning home from a wonderful dinner and catch-up session with a friend on October 5th, I learned from Facebook that Steve Jobs had passed. I read with interest posts about his life, quotes from memorable speeches, and from the amount of people posting all over the web and social networks, could sense how much of an impact he and his life must have had on countless millions. I mourned his passing-the loss of a pioneer, a world innovator, and imagineer as I considered him-as I grieved for Amy Winehouse when I learned of her passing-sad, tragic in Amy’s case, but very removed. As I flipped around Facebook into my personal profile posts, I read something on a high school friend’s post about a personal and childhood friend of mine that caused me to read more-something along the lines of “how do I live without my best friend? I miss you already.”

First impression was that my friend Amberlin had moved, and must have moved far away from her best friend Amber, who I was also in touch with on Facebook, but as I read more posts on Amber’s page, I came to the one that nearly stopped my heart: RIP Amberlin. Here I was mourning the passing of Steve Jobs-reposting his photo and a particular quote that struck me; someone I didn’t ever know-while my childhood friend had suddenly passed away at 39. I just wouldn’t accept it. I didn’t want to accept it. Amberlin was my muse and my light for the past few years as she had fought tirelessly, courageously for 15 years against what some consider an invisible disease-Chronic Fatigue Syndrome and ME. It wasn’t invisible to her. She lived daily with constant reminders. She was constantly posting on her blog and facebook information about CFS to educate others, to raise awareness to the cause-to make CFS less invisible. And when she wasn’t fighting her own disease, she turned to art. She painted; she made jewelry; she surrounded herself with things she loved such as chickens and nature. She was a light in her community and to all those she touched.

Some of Amberlin's Art on Etsy